2016 Spartan World Championships: Ava's Challenge

2016 Spartan World Championships: Ava's Challenge

About This Campaign

This... is... Spartan Ava!
She may only be 7 years old, but Ava Wright has been a Chiari Champion for a while now.  She works really hard to support research, education and advocacy that helps other patients and families affected by Chiari malformation, syringomyelia and related disorders.  

Just in time for Chiari Awareness Month, Ava got some really cool news!  Even though the race is only supposed to be for kids ages 11-14, this feisty little 7-year-old was approved to run in the 2-mile Spartan Kid's Race as part of the 2016 Spartan World Championships-- she will be racing from the top kid athletes from around the world!!  Her family and friends are so proud of her and so are all of us at CSF.  In support of Ava's amazing accomplishment, let's help by raising some funds for the programs that she loves to support!  Donating even a little bit of money-- even $10!-- to Ava's fundraiser will help cheer her on while she undertakes this new challenge and support the education and research programs that she loves.  

Let's all help Ava achieve her vision to change the world... one stride at a time!

More about Ava
At 4 years old, Ava Wright had her first decompression surgery in June of 2013. 

Understanding that she was fighting just one of many battles in her lifelong journey with Chiari Malformation, Ava’s parents introduced her to endurance and obstacle course racing as a way to instill within her that there would always be obstacles to overcome, and that some miles are better than others; but you have to keep moving ahead.

Ava participated in her first Spartan race just after turning 5.   In the two years since, she’s done over 20  obstacle course races, trail races, and road races, including placing in the top 100 overall (adults included) of at the Terrain Racing Obstacle Course Race.

Living by the Spider-Man credo “With great power comes great responsibility”, Ava and members of Ava’s Avengers have raced to raise over $10,000 for charities and families of children with medical conditions.  To see more of Ava and her Avengers’ adventures, go to AvasAvengers.com.

Location / Venue

  • Address:
  • Lake Tahoe
  • Olympic Valley, CA
  • USA
Chiari & Syringomyelia Foundation

Campaign to Support Chiari & Syringomyelia Foundation

CSF: Who Are We?

CSF (Chiari & Syringomyelia Foundation, Inc.) is a 501(c)(3) non-profit organization that was founded in October 2007 with the goal of raising awareness and finding a cure for Chiari malformation (CM), syringomyelia (SM) and related disorders. 

CSF Network of Experts

The CSF Scientific Education & Advisory Board is comprised of several internationally renowned medical doctors, professors, scientists and experts. Further, the CSF Board of Directors and Board of Trustees include community and business leaders, educators, legal experts, families and patients, who have long been advocates in the CM/SM community. Their skills and drive to develop, fund, and oversee CSF programs and research will improve the lives of the over one million families affected by Chiari malformation, syringomyelia and associated disorders in the US, alone. 

CSF: Recognition & Awards

CSF is currently the only organization serving patients with Chiari, syringomyelia and related disorders to have earned all three of the following distinctions: BBB Wise Giving Alliance Seal, Guidestar Gold Seal and the Health On the Net Code. Check us out in the November 2016 issue of USA Today among the other nonprofits deemed as both effective in their missions, and responsible with their donors' dollars


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  1. Cathy Poznik
    Cathy Poznik gave a $10 donation
    Dedication In Honor of: Chiari Warrior Ava
    Go Ava!!
    almost 2 years ago · Like