Whipple Warriors and Their Friends

About This Campaign

We are a worldwide network of Whipple patients and caregivers who offer support and hope and work together to support the needs of the Whipple patient before, during and after surgery using both the Facebook Whipple Surgery Survivor Group or better known as Whipple Warriors and the website whipplewarriors.org to share Whipple related information.
Neuroendocrine Cancer Awareness Network

Campaign to Support Neuroendocrine Cancer Awareness Network

NCAN INC is a non– profit charity whose mission is to intensify awareness of Neuroendocrine Cancer in the medical community and general public around the world. NCAN also assists patients, caregivers and support groups worldwide by providing access to important & updated information about the disease. Through the years NCAN has produced over 50 patient conferences. Many are available to view on our website. Our toll free phone support line is answered by a patient and caregiver. Call today for your free information packet. We also provide funding for research into Neuroendocrine Cancers.

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Ronda Ayala, founder of the Whipple Warriors

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Why Partner with NCAN?

Since our founder, Ronda Ayala, was diagnosed with a Pancreatic Neuroendocrine tumor, it has been decided that we will work with The Neuroendocrine Cancer Awareness Network who saved her life by educating her that her cancer can come back.
Maryann, the Founder of NCAN, gave her the courage to become her own advocate. She changed doctors from the one who told her she was 99% cured and started to monitor her blood markers. Four and a half years later, it did indeed return in her liver.
 
She credits NCAN with saving her life and now has joined their Board of Directors to bring NET (Neuroendocrine cancer, also known as Carcinoid Cancer) to help bring education to this rare disease.
It is also known as the Steve Jobs cancer and with proper education can be managed for many years.
 
We would like to thank NCAN for their support and for making this educational website possible through their sponsorship. 

The Whipple Warriors Story

On January 28, 2010 Ronda Ayala, R.N.,  had a Whipple, also known as the Granddaddy of all surgeries, at the Universtiy of Miami by Dr. Joe Levi for a Neuroendocrine Tumor on the head of her pancreas.

 

After being in the hospital for almost 2 weeks post Whipple, she was discharged and sent home to recupperate. This seemed like a simple task however, she soon found that it was not as easy as she thought. She was having cramping, diarrhea, nausea and was having difficulty eating. She tried to manage these symptoms as well as she could using her nursing knowledge. During this time, she developed post Whipple Pancreatitis and began having post Whipple pain attacks which left her almost breathless with pain and exhaustion.

She looked around the internet for help, however, there was nothing she could find for post Whipple care. There was no where to turn to for help and advice from others who had a Whipple. She was alone.

Being a Christian, she knew that God had given her a second change at life. It could have been so much worse. She kept asking God what he wanted her to do with this chance. One day while she was in church, she heard God talk to her in her heart. He told her to make a Facebook group, create a Webpage and write a book for Whipple patients. So on May 15, 2010 she did as she was instructed. The Whipple Surgery Survivor Group was founded on Facebook. Soon, her page was found by Whipple patients that she believed were led there by God. He was in charge of this and because it was him, it would be successful. It has gone on to become the largest group of Whipple patients in the world.

 

Since people who had the Whipple have gone through so much, she started to call them Warriors and the name Whipple Warriors was born. As the Whipple Warriors grew in numbers, she soon knew she needed more help so along with Michelle Toth and Jasmin Bayer they developed a webpage and started the Whipple Warriors Non-Profit whose aim was to educate, advocate and support Whipple patients. The goal was to give support before, during and after the Whipple. Patients even started to bring their computers with them to the hospital to communicate with the group.

 

Now that the group has grown to the thousands around the world, there is always someone on the page to turn to for support no matter the hour.  Distinction had to be made that the page and site is not inteneded to give medical advice but only to communicate with other patients and discuss shared experiences.  

 

In 2016, the Whipple Warriors have decided to take another turn. The medical world of today has allowed Whipple patients to live much longer. We are committed to work along side of researchers who are interested in the study of the post Whipple patient and the long term effects of the surgery. This is the reason for this new Whipple Warrior.com site. This site will be used to keep Whipple patients up to date on the latest changes that the medical world has for Whipple patients.

 

The Whipple Warriors of today are paving the road for the Whipple patients of tomorrow!

 

  1. Whipple Warriors and Their Friends
    Whipple Warriors and Their Friends has added 1 photo to album Ronda Ayala, founder of the Whipple Warriors
    about 2 months ago · Like