Epilepsy Ontario

About This Organization

About Epilepsy: 
There are 72,000 Ontarians living with epilepsy, 10,000 of which are children and these numbers are growing. Each year 6,500 Ontarians are newly diagnosed with epilepsy, making epilepsy one of the most common neurological disorders. Epilepsy is most commonly associated with convulsive seizures, however, there are more than 40 different types of epilepsy with a range of different symptoms. Although 70% of people are able to control their epilepsy through anti-seizure medication, for the remaining 30%, epilepsy can be a burden. For many people living with epilepsy, the fear and uncertainty of never knowing when and where they will experience a seizure can make day-to-day activities extremely difficult. In certain cases, living with epilepsy can be debilitating, even life-threatening. For more information about Epilepsy visit http://epilepsyontario.org/

About Epilepsy Ontario:

Epilepsy Ontario is the provincial voice of Epilepsy. We are a registered charitable organization dedicated to promoting independence and optimal quality of life for children and adults living with seizure disorders. We do this by promoting information, awareness, support services, advocacy, education and research. 

For many individuals and families dealing with Epilepsy, there can seem as if there is nowhere to turn for help. One of the ways that Epilepsy Ontario helps people in need is through our Epilepsy Information Specialist, Suzanne Nurse. People can reach out to her, no matter where they are. She is there at the end of a phone, ready to provide support, information, and guidance when needed, like in the case of Mary* and her 4-year-old daughter Lisa*. Like many 4-year-old's, Lisa was just starting school and beginning to make new friends, but Lisa and her parents had more to think about than getting ready for school each day. Lisa has Epilepsy and was experiencing seizures several times a day. Her teacher and the school principal  were concerned about their ability to manage Lisa’s seizures.

Unfortunately, Lisa had a negative reaction to the first anti-seizure drug that was tried and her paediatrician took her off anti-convulsant medication all together. Lisa’s seizures continued, her parents were frightened and felt they had no control and could not help their daughter. Mary felt that they needed a second opinion, but was concerned about offending her doctor. They live in a rural area of Ontario and there were no other pediatricians within 100kms. Epilepsy Ontario’s Epilepsy Information Specialist provided epilepsy training for the school staff and helped Mary navigate the health care system by providing information and communication tools so she could request a referral to a paediatric epileptologist (neurologist who specializes in epilepsy). With the help of Epilepsy Ontario, Mary was able to connect with the help her daughter needed to get her seizures better under control and to successfully complete senior kindergarten. 


*Real names were not used. 

Campaigns

No campaigns yet.

  1. Marc Milgrom
    Marc Milgrom gave a $100 donation to Help Us Support People Living With Epilepsy
    Peter, Good luck with the race and your fundraising efforts for this important cause!
    $100 to Help Us Support People Living With Epilepsy
    With a $25 donation, your name will be painted on the Epilepsy Awareness Rally Car which will be seen by thousands around the world during the Targa Newfoundland Race. From Sept. 14 to 19 the Epil...
    almost 3 years ago · Like
  2. Greg van Dalen
    Greg van Dalen gave a $50 donation to Help Us Support People Living With Epilepsy
    is it possible to use a 1morelap.ca sticker instead of my name ? if not, my name is cool, happy to help! and good luck!!
    $50 to Help Us Support People Living With Epilepsy
    With a $25 donation, your name will be painted on the Epilepsy Awareness Rally Car which will be seen by thousands around the world during the Targa Newfoundland Race. From Sept. 14 to 19 the Epil...
    almost 3 years ago · Like
  3. Melanie Jeffrey
    Melanie Jeffrey gave a $200 donation to Help Us Support People Living With Epilepsy
    In memory of Michael Jeffrey
    $200 to Help Us Support People Living With Epilepsy
    With a $25 donation, your name will be painted on the Epilepsy Awareness Rally Car which will be seen by thousands around the world during the Targa Newfoundland Race. From Sept. 14 to 19 the Epil...
    almost 3 years ago · Like
  4. Amanda Robar
    Amanda Robar gave a $50 donation to Help Us Support People Living With Epilepsy
    $50 to Help Us Support People Living With Epilepsy
    With a $25 donation, your name will be painted on the Epilepsy Awareness Rally Car which will be seen by thousands around the world during the Targa Newfoundland Race. From Sept. 14 to 19 the Epil...
    almost 3 years ago · Like
    • Epilepsy Ontario
      Epilepsy Ontario

      Thank you so much for your support Amanda!

      almost 3 years ago · Like
  5. Diana Masterson
    Diana Masterson gave a $25 donation to Help Us Support People Living With Epilepsy
    I am donating this for my daughter. Please put her name, Sara, on the car.
    $25 to Help Us Support People Living With Epilepsy
    With a $25 donation, your name will be painted on the Epilepsy Awareness Rally Car which will be seen by thousands around the world during the Targa Newfoundland Race. From Sept. 14 to 19 the Epil...
    almost 3 years ago · Like · 1 person likes this.
    • Epilepsy Ontario
      Epilepsy Ontario

      Thank you Diana! We will make sure to get your daughter's name painted on the car! :D

      almost 3 years ago · Like · 1 person likes this.
  6. Rozalyn Werner-Arce
    Rozalyn Werner-Arce gave a $25 donation to Help Us Support People Living With Epilepsy
    $25 to Help Us Support People Living With Epilepsy
    With a $25 donation, your name will be painted on the Epilepsy Awareness Rally Car which will be seen by thousands around the world during the Targa Newfoundland Race. From Sept. 14 to 19 the Epil...
    almost 3 years ago · Like · 1 person likes this.
    • Epilepsy Ontario
      Epilepsy Ontario

      Thank you Rozalyn!

      almost 3 years ago · Like · 1 person likes this.
  7. SARAH COLUCCI
    SARAH COLUCCI gave a $50 donation to Help Us Support People Living With Epilepsy
    $50 to Help Us Support People Living With Epilepsy
    With a $25 donation, your name will be painted on the Epilepsy Awareness Rally Car which will be seen by thousands around the world during the Targa Newfoundland Race. From Sept. 14 to 19 the Epil...
    almost 3 years ago · Like · 1 person likes this.
    • Epilepsy Ontario
      Epilepsy Ontario

      Thank you for your support Sarah!

      almost 3 years ago · Like · 1 person likes this.
  8. Laryssa Bilinsky
    Laryssa Bilinsky gave a $25 donation to Help Us Support People Living With Epilepsy
    $25 to Help Us Support People Living With Epilepsy
    With a $25 donation, your name will be painted on the Epilepsy Awareness Rally Car which will be seen by thousands around the world during the Targa Newfoundland Race. From Sept. 14 to 19 the Epil...
    almost 3 years ago · Like · 1 person likes this.
    • Epilepsy Ontario
      Epilepsy Ontario

      Thank you for your support Laryssa!

      almost 3 years ago · Like · 2 people like this.
  9. Epilepsy Ontario
    Epilepsy Ontario has created a Campaign Help Us Support People Living With Epilepsy
    Help Us Support People Living With Epilepsy
    With a $25 donation, your name will be painted on the Epilepsy Awareness Rally Car which will be seen by thousands around the world during the Targa Newfoundland Race. From Sept. 14 to 19 the Epil...
    almost 3 years ago · Like